Troy Champ and the Mortgage Tree Team are please to support a Family close to Mortgage Tree.
Nevan and Ella, are challenged with a rare form of Muscular Dystrophy classified as Merosin Deficient. This is a gradually progressive disease that results in severe overall muscle weakness, and for Nevan and Ella, the inability to walk, along with many other physical and medical challenges. So, on September 17th, 2016 we will walk for Nevan, Ella and countless others challenged everyday with Muscular Dystrophy.
http://calgary.ctvnews.ca/mobile/young-siblings-bring-awareness-to-muscular-dystrophy-1.1460455
We walk for the future we dream of for Nevan and Ella;
We walk for all the children who rely on mobile devices to experience the joy and freedom of movement;
We walk for the hope of a medical understanding of the disease that will provide ways to slow down the inevitable progression and deterioration that it brings; that our children might enjoy a life that long succeeds our own.
Please join us in walking together, appreciating the gift of every step we are able to take.
Every year we are so deeply inspired and overwhelmed by the amount of love and support we receive from you, our family and friends. We invite you all to join our team! Please walk with us! You truly CAN make a difference in the future and quality of life of people suffering from these limitations. To join our team, or if you wish to make a donation, please follow the link below to their personal page if you would like to donate as well;
We look forward to sharing with you this experience of hope that is so close to our hearts.
Intense physiotherapy, stretching, massage, and assistance with all aspects of movement are all part of every day for Nevan and Ella. Muscle ability and therapeutic benefit are factored into the choice of every recreational activity they participate in. Despite these challenges, Nevan and Ella are happy, bright children who love life. They are both involved in therapeutic horseback riding, assisted swimming, baseball, and sit skiing. Nevan is smart, creative, has a wonderful imagination and a kind heart. He plays the violin, and will start his first year of Junior Orchestra in September. Ella is incredibly animated and funny, with a deep sense of empathy and compassion. She has just started playing the Cello! As parents, we feel incredibly blessed everyday and are inspired by our children’s courage and undaunted spirit. They have brought a profound meaning to our lives and constantly remind us of the precious nature of life.
We dream of a future for Nevan and Ella that is bright with opportunity. Muscular Dystrophy Canada allows us this hope through the many roles that it plays. MDC is focused on finding a cure through dedicated research while at the same time seeking ways to improve life quality and duration. It offers a community where Nevan and Ella can see and feel that they are not so different. And MDC’s generous equipment program helps to provide relief from the heavy financial burden of wheelchairs and other mobility devices that need to be updated regularly as children grow. Nevan and Ella have both benefitted from such equipment that has not only given them a great sense of mobility, but fosters their independence and allows them to play in simple games that they would otherwise only be spectators of.
On behalf of our family, we extend our deepest gratitude for supporting Muscular Dystrophy and in turn providing hope for children like Nevan and Ella.
Mortgage Tree is so happy to know we are helping families that are in need and our passion to continue into the future!